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We're Protected By Cool PEAs

When I read information that shows how much community and a sense of connectedness can decrease recurrence of cancer, I start to think of all those cute little pea avatars I see online every Friday. When I had my biopsies those cool little peas stuck in a baggie in my camisole all huddled together in my cleavage, conforming to the shape of my breast, protecting it and bringing me cool comfort. Online_community_core

Face it - there's an analogy here

Just like those comforting, calming frozen peas in my bodice, what the pea avatars have come to represent are hundreds of virtual strangers who have come together to help me keep my cool on my walk through the cancer maze. It's a beautiful thing

Pea2

Over the weeks since that day in December 2007, I've discovered more and more amazing caring people in the virtual community who don their pea avatars on Fridays - and increasingly I glimpse them on other days too.

More than words or gestures

These people have nothing to gain, but they provide me and other patients with a sense of community, of virtual support, that is absolutely invaluable to us.

We may not be able to measure how long we stay cancer free because of the support of our all those cool frozen peas surrounding us in our communities. We may not be able to measure our love for those people who have never met us and still reach out in many ways to us every day of the week.

But I can point out that I recognize that they help in real, identifiable ways, every single day.

And I thank them from the bottom of my heart.

graphic representation of connections in online communities above from orgnet community where you can learn more about community

Pea avatars complements of the Frozen Pea Fund Flickr group

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About My Cancer

  • Invasive Lobular Carcinoma
    My form of breast cancer is less common than others. In fact only about 6 to 8% of cases of breast cancer are the invasive form that is based in the lobules, not in the milk ducts.

    Invasive, sometimes called Infiltrating, is a scary word. In most cases this form of breast cancer has been present for 8–10 years when detected by a mammogram or physical exam.

    In my case there was clearly an area that felt thickened or dense on December 6, 2007. A mammogram the next afternoon was not able to detect it but it clearly appeared on ultrasound and was confirmed by multiple biopsies the same day.

    During those 8 to 10 years the cancer took to become apparent to me, there has been plenty of opportunity for those invasive cells to get out of the breast and spread to the rest of the body.

    It is after all, by definition, an invasive form of cancer.

    Each year about 190 thousand women are diagnosed with invasive breast cancer in the US and about 40 thousand women will die of the disease. The larger the mass is when discovered the more risk. Mine had tentacled almost 5cm into the surrounding tissue and two other areas in the breast were discovered as well.

    My chances of living another 10 years without cancer in another area are about 40%. The likelihood of one of my other underlying health conditions doing the job before that is 20%. it took a few months to get used to that idea.

    Now though my attitude is that at least I know what I'm facing. It's just not what I expected. Life changes in an instant.

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