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Uncertainty Stinks: Quote

"When you're in the midst of the diagnosis and staging process, and the tumor information is coming back in bits and pieces, at many different times, it is an extremely stressful time in your life.

Uncertainty really stinks! But you will feel SO much better once you know what you're dealing with, when your treatment plan has been worked out, and you start your treatment. Only then does much of that dreadful uncertainty lift, and you finally feel that you are doing something to get rid of the problem."

Marisa Weiss MD

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Oh Susan. *hugs*

I remember when my dad first started deteriorating and how scary and devastating it was to see him in so much pain but not know what was causing it. I screamed at one of his doctors who told us yet again when a test came back negative once again.

Finally the doctors nailed it. When they started the treatment there was a bit of relief that we were doing *something*. Once we knew what he was dealing with, there wasn't so much fear. The anger lessened because the fear lessened. Because we knew it wasn't a brain tumor or MS or many of the other things that were speculated.

In summary, not knowing and the fear that comes with that, really sucks.

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About My Cancer

  • Invasive Lobular Carcinoma
    My form of breast cancer is less common than others. In fact only about 6 to 8% of cases of breast cancer are the invasive form that is based in the lobules, not in the milk ducts.

    Invasive, sometimes called Infiltrating, is a scary word. In most cases this form of breast cancer has been present for 8–10 years when detected by a mammogram or physical exam.

    In my case there was clearly an area that felt thickened or dense on December 6, 2007. A mammogram the next afternoon was not able to detect it but it clearly appeared on ultrasound and was confirmed by multiple biopsies the same day.

    During those 8 to 10 years the cancer took to become apparent to me, there has been plenty of opportunity for those invasive cells to get out of the breast and spread to the rest of the body.

    It is after all, by definition, an invasive form of cancer.

    Each year about 190 thousand women are diagnosed with invasive breast cancer in the US and about 40 thousand women will die of the disease. The larger the mass is when discovered the more risk. Mine had tentacled almost 5cm into the surrounding tissue and two other areas in the breast were discovered as well.

    My chances of living another 10 years without cancer in another area are about 40%. The likelihood of one of my other underlying health conditions doing the job before that is 20%. it took a few months to get used to that idea.

    Now though my attitude is that at least I know what I'm facing. It's just not what I expected. Life changes in an instant.

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