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Art: My Fallback Treatment Funding

WearableframedI'm researching Complementary and Alternative Medicine for cancer treatment - not in the hope that I'll ever get the insurance to pay for it but to be better informed about what might help.

So far Dana-Farber Cancer Institute's website is most helpful. It is written in patient-friendly language but also includes information for doctors to download.

Their cancer care and research is so forward thinking that their therapy center combines massage therapy, acupuncture, nutritional guidance, and other services with more traditional ones. YAY, right?

BUT - even they say

"Despite the documented benefits of some of these therapies, most insurance plans will not pay for them.

Their response is to adapt. Dana-Farber bills health insurance for what they can, offer some at no charge at all, and some have a reduced fee.

Wearable1aSo if NIH, NCF, Dana-Farber research and hundreds of other studies show positive results to alternative therapy why won't insurance cover it? It's nuts but that's the case with my top of the line insurance too.

So I'm putting together a collection of Art pieces to sell in order to pay for it myself

Art is my answer to helping underwrite costs of my care. These are mixed media construction pieces that can be shown in shadowbox frames or worn as pins

Because as always my community is really my strongest link in my chain of care - far more vital to me than any insurance company might be. I'll be looking for your help in talking about what I'm doing and why.

What about the future? Hopefully it will include both education and legislation

We need insurance that pays for compassionate care of any sort that has been shown to boost immune function, reduce pain, and improve overall quality of life.

What of patients who can't make and market art through their online networks? What if their skills involve more physically challenging activities they just can't do when they are sick?

That doesn't seem right.

In the meantime, I've got art.

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Kudos to you for tacking costs with art! Can't wait to see what you do!

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About My Cancer

  • Invasive Lobular Carcinoma
    My form of breast cancer is less common than others. In fact only about 6 to 8% of cases of breast cancer are the invasive form that is based in the lobules, not in the milk ducts.

    Invasive, sometimes called Infiltrating, is a scary word. In most cases this form of breast cancer has been present for 8–10 years when detected by a mammogram or physical exam.

    In my case there was clearly an area that felt thickened or dense on December 6, 2007. A mammogram the next afternoon was not able to detect it but it clearly appeared on ultrasound and was confirmed by multiple biopsies the same day.

    During those 8 to 10 years the cancer took to become apparent to me, there has been plenty of opportunity for those invasive cells to get out of the breast and spread to the rest of the body.

    It is after all, by definition, an invasive form of cancer.

    Each year about 190 thousand women are diagnosed with invasive breast cancer in the US and about 40 thousand women will die of the disease. The larger the mass is when discovered the more risk. Mine had tentacled almost 5cm into the surrounding tissue and two other areas in the breast were discovered as well.

    My chances of living another 10 years without cancer in another area are about 40%. The likelihood of one of my other underlying health conditions doing the job before that is 20%. it took a few months to get used to that idea.

    Now though my attitude is that at least I know what I'm facing. It's just not what I expected. Life changes in an instant.

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