« June 2008 | Main | August 2008 »

Entries from July 2008

What's Making Waves in Our Brains?

"The cell phone is a remarkable invention and a breakthrough of great social importance. Our society will no longer do without cell phones. None of the members on the expert committee has stopped or intends to stop using cell telephones. This includes Dr. David Servan-Schreiber, a 16 year survivor of brain cancer. However, we, the users, must all take precautionary measures in view of recent scientific data on the biological effects of cell phone use, especially those who already have cancer."

Cellphone Thus doctors at the University of Pittsburgh Cancer Institute, based on advice from an international panel, are urging not panic, but caution. But the number of doctors in their advisory group, and their cautious, workmanlike approach have made an impression on me.

Now with everything from estrogen, to food additives, to where my father worked, to what was in the water when I was five, to the air we breathe and what's in our mascara suspect as something that may have caused my cancer in the first place or make it more likely to pop up again, this is all a little unsettling.

And while I'm not unduly concerned, I am now bothered that my 10 year old granddaughter owns a cell phone - and I'm hoping she'll use it primarily for texting rather than talking.

Perhaps what gave me greatest pause recently were not the words in the Pittsburgh cautionary bulletin - but the image shown. 

"1) Electromagnetic fields from cell phones are estimated to penetrate the brain especially in children. (Figure 1.) . .  Modeling in the diagram below estimate that young children are more susceptible to electromagnetic fields due to smaller sized brains and softer brain tissue."

Figure 1. Estimation of the penetration of electromagnetic radiation from a cell phone based on age (Frequency GSM 900 Mhz) (On the right, a scale showing the Specific Absorption Rate at different depths, in W/kg) [1]

That's downright disturbing. While the doctors writing the report feel that "Electromagnetic fields generated by cell phones should be considered a potential human health risk" they also caution that not enough time has passed to really have data that is conclusive.

And perhaps the most important observation is that although studies have NOT proven that cell phones are safe NOR show that they present a hazard.

So in the meantime, while a definitive answer is in the works - and who can predict when all experts will agree (I predict: never) - why not do what this panel advises and be aware that:

  "..growing evidence indicates that we should reduce exposures, while research continues on this important question.

Read more about the recommendations from the Center for Environmental Oncology and their Environmental Health information. And let's be safe out there. At least as safe as we can figure out how to be.

Living our own "Last Lecture"

I don't usually post the same general content on two blogs, but this is an exceptional time and a cluster of very visible cancer deaths seem to be all around us. So the Boobs blog readers who don't always read the Artsy Asylum Blog may have missed what I passed on there.

I wanted to share it with all of the people who I have any reach to - because I believe it's such an important thing that I need to talk about.

Here's where I am. Since December 7th 2007 I'm in and out of hospitals and clinics and medical offices more than anyone wants to be. And maybe as a part of this or because it's just who I am, it's agonizingly difficult for me to see people with cancer deteriorate and die - even those I do not know, or know only slightly. One of these, Randy Pausch, the Carnegie Mellon professor whose "last lecture" made him famous, died today almost a year after he was diagnosed with pancreatic cancer.

In the time leading up to his death Randy looked good, in contrast with Tony Snow's appearance in the months before he died earlier in July of colon cancer that had spread to first his liver and then elsewhere. Tony was gaunt and had aged twenty years in my eyes. My heart hurt to see him.

Then every weekday that Leroy Seivers of NPR writes his blog I get emotional again as I see evidence of a steady decline and that the always insightful and frank Leroy is near the end of his life, as he now weighs the pros and cons of hospice, and has a home health aide four times a week.

But as sadness envelops me, Randy Pausch simply bloomed! In the months before his death Randy was upbeat and seemed unfazed by what the rest of us are overwhelmed by.

And that gives us all something to consider.

When he gave this Carnegie Mellon commencement address in May, he had lived three months longer than the three to six months doctors had predicted, leading a friend to say he was “beating the Reaper.”

“We don’t beat the Reaper by living longer,” Pausch said. “We beat the Reaper by living well.”


My message in reflection:

  • Please love others and live well while you can.
  • Give generously of yourself and your spirit.
  • Adopt a cause or two.
  • Be present to what's happening around you and not distracted by the latest shiny thing of the blogosphere.

It's easy to be engaged by internet popularity, blog stats, being included in lists and invited to functions. Things are nice to own. But will that really matter when you face the end of the road?

Like Randy Paush who was only 47, or others we know who were suddenly stricken and died much earlier, we never know when an unexpected diagnosis - or a bus - will mark the end of our time here.

Let's make today even - simply this day - one that we'd be proud to call our last.

And then tomorrow let's get up and do it again.

And while you're doing it, just know that I love you all.

How the Peapods Came to the Hermit and How You Can Help

    This video http://www.facebook.com/video/video.php?v=24061806261&ref=nf is a quick snippet of the Frozen Peas campsite in Second Life as part of this year's Relay for Life virtual fund raising event sponsored by the American Cancer Society.

Team Captain Joyce Bettencort writes:

"The theme this year was 'Heroes' and to a lot of us in the online, social media scene Susan Reynolds, her personal fight with breast cancer and the warmth and courage of sharing her experiences with us, has made her our hero. Because of that, several us, with Susan's blessings and help put together a team and campsite for this years virtual relay event."

The virtual relay walk and events starts at 10AM (PST) this Saturday the 19th and you can walk with us and visit the campsite in SL at:

http://slurl.com/secondlife/Heroes%2010/115/95/25

To donate to the Frozen Peas team go to:  http://tinyurl.com/6czpxl  Peaplant

And find out more info on Susan and the real life Frozen Peas on her blog site: http://boobsonice.com/


Note
Joyce & other Second Life Pea-funders came up with this idea & jumped in with no input from me other than "sure you should do it" Not only did I have no idea what the theme was to be I'm not sure anyone did.

Now though embarrassed to be called a hero,I thank them from the bottom of my heart.

Most people don't know that since my second surgery in June, this time involving multiple lines of stitches all across my chest, things have been beyond difficult. In the month since the surgery my incisions have still not closed.

Yes, that's painful in may ways and it has my emotions raw and often depressed. I've become quite the hermit.

So an idea of a second Life campsite visit has been so emotional an idea for me - well I just couldn't bring myself to do it. For the second time this week I had to say I couldn't do something - and all because I knew I'd fall apart when I saw it. I knew I'd be in tears at their talent & generosity.

Instead they brought the peek to me through this video and I'm more touched than I can say.

Please help me thank them by giving your support on Sat July19th in the relay for Life. If you can sign into Second Life and Visit the Pea Team campsite at
http://slurl.com/secondlife/Heroes%2010/115/95/25 it would be an honor.

And if you'd like to make a donation through the website at http://tinyurl.com/6czpxl  Super!

Thanks to all who helped in Second Life & previously. I am deeply grateful & profoundly humbled.

                  Susan - aka Tynan Clary in Second Life
   

The Pea Fund and the Kindle Pipedream

The new Kindle looks cute in pink - but not cute enough for me to want just because it's a nifty color. KindlepeafundAnd the fact that along with lots of cancer patients I can't afford one now doesn't mean I don't want the first generation kindle as is, whatever color.

But when I hear about the new technology in the model coming later this year I might have to hold that thought of voracious "wanting" in the here and now. Should I in fact be thankful that there's not the money in the cookie jar for this extra?

Maybe. because allegedly the new one is even better. The last issue is will the price stay the same or might it drop as did the iphone? That could make all the difference.

On the other hand Amazin' Amazon could come up with a pea green model and donate some to the Frozen Pea Fund for patient use. I'd have to try it out wouldn't I?

Or so what if it wasn't green. What if it was just a Kindle with a sticker to show that we have friends helping us stand up against cancer.

Frozenpeafund3 Ah, now THAT would be a brilliant use of web 2.0 and the social media space inside all our heads. Patients do sit around at doctors' appointments and have a lot of down time in general. What could be better than having a kindle to keep us company and in touch?

And what could be better for Amazon than to have a Kindle in hundreds of hands in hospitals and doctors' offices and cafes and - well spread across the country? Which all goes to show that I may be sick but my brain's not dead yet.

More important however is this question. Who's going to pitch this at Amazon?

2008, The Year You Stop Thinking And Write

Each of us has our own exclusive story and no one else can tell it better. We have our unique views on life and on the lives of others.

                   Susan Scharfman

What Goes in Your Body?

I'm trying to eat better since I was diagnosed with cancer in December and even better since the complications of my second surgery in June.

Beet Never much of a fried foods person I've always liked fruits and vegetables but over the last six months have added some things to my diet and subtracted others in the interest of wellness. Most of the time I'm confident that I'm doing a good job, especially with the help of shopper food/manager daughter Kate who has been somewhat cornered into the role of nutrition guru since she's smart, savvy, a great researcher and has taken on the flipped upside-down role of stay-at-home mom to me.

We're lucky to be guided by my friend and medical librarian Patricia Anderson who tells us everything we didn't want to know about plant estrogens which I must avoid because my tumor cells need estrogen to grow. But still sometimes I wonder if I could be doing more.

So I was interested to see that Tara Parker-Pope  who writes on health for the New York Times Blog recently asked Dr. Jonny Bowden, author of “The 150 Healthiest Foods on Earth,” (some of them fairly obscure) to list some favorite foods that are - thank you Tara for specifying this part - easy to find.

Here's his list:

  1. Beets
  2. Cabbage.
  3. Swiss chard
  4. Cinnamon
  5. Pomegranate juice
  6. Dried plums
  7. Pumpkin seeds
  8. Sardines
  9. Turmeric
  10. Frozen blueberries
  11. Canned pumpkin

So how did you do? Pumpkinseeds

How many of these do you eat regularly? Forced to poke around your pantry to see if you've got any of these in stock?

I've got three of the eleven in the house; one only by accident I admit. (Thank you Connie Reece for the Texas nuts that contained a fair number of pumpkin seeds which I actually was surprised to love. Now I just need to find your supplier.)

Blueberries top my cereal every morning and I love beets but have them only occasionally. Cabbage is not something I love but I don't dislike it either and it is part of salads that I routinely order when eating out or via take-out.

Pomegranate juice is new for me but very tasty, not too tart at all though some think so.

Cinnamon is hard to fit into my routine, though and I wonder if it is worth the effort for the little I'd actually consume without wanting to head off to the pastry shop for something that would be decidedly unhealthy.

Sardines and canned pumpkin though? Don't look for that happening any time soon.

.
Put it to Use

To find suggestions on how to include these foods in our diets I poked around here and then looking further into this I found that an article in Mental Floss touts the goodness of all portions of the pumpkin, including the blossom, and provides a handy chart to back up the information.

Pumpkinseedchart

About My Cancer

  • Invasive Lobular Carcinoma
    My form of breast cancer is less common than others. In fact only about 6 to 8% of cases of breast cancer are the invasive form that is based in the lobules, not in the milk ducts.

    Invasive, sometimes called Infiltrating, is a scary word. In most cases this form of breast cancer has been present for 8–10 years when detected by a mammogram or physical exam.

    In my case there was clearly an area that felt thickened or dense on December 6, 2007. A mammogram the next afternoon was not able to detect it but it clearly appeared on ultrasound and was confirmed by multiple biopsies the same day.

    During those 8 to 10 years the cancer took to become apparent to me, there has been plenty of opportunity for those invasive cells to get out of the breast and spread to the rest of the body.

    It is after all, by definition, an invasive form of cancer.

    Each year about 190 thousand women are diagnosed with invasive breast cancer in the US and about 40 thousand women will die of the disease. The larger the mass is when discovered the more risk. Mine had tentacled almost 5cm into the surrounding tissue and two other areas in the breast were discovered as well.

    My chances of living another 10 years without cancer in another area are about 40%. The likelihood of one of my other underlying health conditions doing the job before that is 20%. it took a few months to get used to that idea.

    Now though my attitude is that at least I know what I'm facing. It's just not what I expected. Life changes in an instant.

Helping


  • Amazon Honor System Click Here to Pay Learn More

Funding Cancer Research


  • We Will Not Apeas Cancer

Twitter Updates

    follow me on Twitter

    Iced Visitors


    Blog powered by TypePad
    Member since 08/2005
    My Photo

    -Contact-

    • Frozen Pea Fund Office Second Life:
      Frozen Pea Fund SL

      *Office hours Tues 5PM Eastern/ 2PM Pacific
      or just drop in & pick up a frozen pea t-shirt, pea beach-ball etc.
      *Drop a notecard to my SL avatar Tynan Clary anytime.
    • by mail
      Susan Reynolds
      1474 Northpoint Village Ctr #314
      Reston Virginia 20194

    Susan's Professional Blog

    Find me here

    43Things Delicious Facebook Flickr LinkedIn Ma.gnolia Other... Pownce Reddit Skype StumbleUpon Twitter Upcoming YouTube

    Psst...


    • Alltop, all the cool kids (and me)


    • my 'currently-reading' shelf:
       my currently-reading shelf

    • TwitterCounter for @susanreynolds

    Blog Catalog


    clickety

    • Clicky Web Analytics